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We are incredibly honored to share that the Synovial Sarcoma Foundation received First Place in the Advocacy in Action Award at the 16th Annual SPAGN Conference in Stockholm, Sweden. Hosted by the Sarcoma Patient Advocacy Global Network (SPAGN), this award recognizes advocacy initiatives making a meaningful impact for sarcoma patients, families, clinicians, and researchers around […]
We are thrilled to announce a significant milestone for the Synovial Sarcoma Registry and Biospecimen Repository, as we proudly welcome our 100th registrant. This achievement signifies the growing commitment to advancing research and improving treatment options for patients with synovial sarcoma. The registry serves as a pivotal resource, collecting invaluable data and biospecimens from patients […]
Not every detected cancer is clinically meaningful. For younger patients, especially, this can mean confronting a diagnosis that may never progress but still carries psychological and treatment burdens.
The Synovial Sarcoma Registry, launched in partnership with the Children’s Hospital of Philadelphia (CHOP), continues to grow as a critical resource for advancing research and improving patient care. To date, the registry has compiled an extensive dataset, including over 1,800 imaging studies, 96 outside medical records, 42 blood specimens, and 29 tissue specimens, with four […]