Synovial Sarcoma Registry, Latest News

Synovial Sarcoma Foundation Wins First Place at the 16th Annual SPAGN Conference

May 6, 2026 Comments Off on Synovial Sarcoma Foundation Wins First Place at the 16th Annual SPAGN Conference
A collage of conference scenes: group photo, small group with certificate, speakers at podiums, attentive audience in a tiered auditorium, and conference banners displayed.

We are incredibly honored to share that the Synovial Sarcoma Foundation received First Place in the Advocacy in Action Award at the 16th Annual SPAGN Conference in Stockholm, Sweden.

Hosted by the Sarcoma Patient Advocacy Global Network (SPAGN), this award recognizes advocacy initiatives making a meaningful impact for sarcoma patients, families, clinicians, and researchers around the world.

A collage of conference scenes including group photos, speakers presenting in an auditorium, attendees listening, and a woman holding a certificate with colleagues. Conference banners and presentation slides are visible throughout.

“We can’t overstate what an honor this is. It is one of the highest levels of recognition an organization can earn in this community.”

— Nathan Imperiale, Board Chairman

SSF was recognized for our advocacy efforts to create real-world evidence to support research, all while advancing our clinical registry, biorepository, and international tumor board.

For a rare cancer like synovial sarcoma, every patient story, every sample, and every piece of shared information matters. Because patient numbers are small and research is often fragmented, community participation plays a critical role in helping researchers better understand the disease and move future treatments forward.

This recognition belongs to all of you: the patients, families, advocates, researchers, physicians, and supporters helping build something bigger together.

If you or a loved one has been affected by synovial sarcoma, we hope you’ll consider participating in the Registry & Biorepository. Your involvement could help shape future research and bring us closer to better treatment options for the entire community.

Learn more and enroll at:
https://redcap.chop.edu/surveys/?s=CA89R49CP7AEXMPY

Thank you for continuing to move this mission forward with us.

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