Every Story Shapes the Future
Behind every synovial sarcoma diagnosis is a person – and a circle of family and friends navigating
treatment, survivorship, or remembrance. These stories create connection, spark advocacy, and reveal
human side of research.
Whether you are in treatment, NED, living with recurrence, supporting someone you love, or honoring
someone you’ve lost – your story belongs here.
Filter Patient Stories By:
MEET PATIENT
Savannah Jones
Savannah was diagnosed with metastatic Synovial Sarcoma in late 2025 after experiencing severe upper gastric pain that led to imaging revealing innumerable lung nodules. Following extensive testing, biopsies, PET scans, MRIs, and genetic testing at MD Anderson Cancer Center, doctors identified her primary tumor in her upper left arm and confirmed the presence of the […]
MEET PATIENT
Sam Labrecque
Sam was diagnosed with Synovial Sarcoma in February 2023 during his senior year of high school after discovering a lump on the front of his neck. Initially, doctors believed the swelling was related to strep throat, but after the lump failed to shrink with medication, Sam was referred to specialists at Jefferson Hospital in Philadelphia. […]
MEET PATIENT
Irene Benton
Irene first noticed a lump in her right leg in 2019. An initial ultrasound suggested it was a benign lipoma, and she was advised not to worry. Over the next several years, the lump continued to cause intermittent discomfort. By 2025, the pain had increased significantly, and Irene felt strongly that something was not right. […]
MEET PATIENT
Carrie Carpunky
Carrie first began experiencing unusual stomach pain in 2018, describing it as a gnawing sensation that often occurred when she had not eaten. At the time, she was under significant stress caring for family members and assumed the pain was related to an ulcer. After delaying medical care for nearly two years, worsening acid reflux […]
MEET PATIENT
Moon
Moon was ten years old when she noticed a lump on her left tibia that looked like a small ball. She lived with it for nine months because no one could determine what it was. At one point, doctors planned for an amputation, but during her hospitalization, her parents found an orthopedic specialist in another […]
MEET PATIENT
Taylor Duvall
Taylor’s diagnosis followed years of misattributed symptoms. What began as chronic foot pain was initially diagnosed as plantar fasciitis, supported by imaging that showed bone spurs. For nearly two years, custom insoles seemed to manage her discomfort. In late 2021, however, Taylor noticed a growing mass on her left foot. After sudden swelling and an […]
Thank You for Sharing Your Story
Please share any details of your journey that you feel comfortable with. By submitting your story, you allow the
Synovial Sarcoma Foundation to share it across our website, social media, and educational materials to help
support and inform others.
