Every Story Shapes the Future

Behind every synovial sarcoma diagnosis is a person – and a circle of family and friends navigating
treatment, survivorship, or remembrance. These stories create connection, spark advocacy, and reveal
human side of research.

Whether you are in treatment, NED, living with recurrence, supporting someone you love, or honoring
someone you’ve lost – your story belongs here.

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MEET PATIENT

Savannah Jones

Savannah was diagnosed with metastatic Synovial Sarcoma in late 2025 after experiencing severe upper gastric pain that led to imaging revealing innumerable lung nodules. Following extensive testing, biopsies, PET scans, MRIs, and genetic testing at MD Anderson Cancer Center, doctors identified her primary tumor in her upper left arm and confirmed the presence of the […]

Simple graphic with a teal outline of a person above the name "Savannah Jones" highlighted in yellow, and the Synovial Sarcoma Foundation logo in the bottom right corner.

MEET PATIENT

Sam Labrecque

Sam was diagnosed with Synovial Sarcoma in February 2023 during his senior year of high school after discovering a lump on the front of his neck. Initially, doctors believed the swelling was related to strep throat, but after the lump failed to shrink with medication, Sam was referred to specialists at Jefferson Hospital in Philadelphia. […]

A baseball player in a red jersey and white pants prepares to pitch. "Sam Labrecque" is written in bold yellow text. The Synovial Sarcoma Foundation logo appears in the bottom left corner.

MEET PATIENT

Irene Benton

Irene first noticed a lump in her right leg in 2019. An initial ultrasound suggested it was a benign lipoma, and she was advised not to worry. Over the next several years, the lump continued to cause intermittent discomfort. By 2025, the pain had increased significantly, and Irene felt strongly that something was not right. […]

A smiling woman with a blue face mask under her chin is shown next to the name “Irene Benton.” The Synovial Sarcoma Foundation logo and name appear in the lower left corner on a soft green background.

MEET PATIENT

Carrie Carpunky

Carrie first began experiencing unusual stomach pain in 2018, describing it as a gnawing sensation that often occurred when she had not eaten. At the time, she was under significant stress caring for family members and assumed the pain was related to an ulcer. After delaying medical care for nearly two years, worsening acid reflux […]

A woman with short brown hair smiles at the camera. Text reads "Carrie Carpunky." The Synovial Sarcoma Foundation logo is in the lower left corner. The background features green and yellow circular designs.

MEET PATIENT

Moon

Moon was ten years old when she noticed a lump on her left tibia that looked like a small ball. She lived with it for nine months because no one could determine what it was. At one point, doctors planned for an amputation, but during her hospitalization, her parents found an orthopedic specialist in another […]

Minimalist illustration with a teal outline of a person above a yellow box labeled "Moon." The Synovial Sarcoma Foundation logo appears in the bottom right corner of the image.

MEET PATIENT

Taylor Duvall

Taylor’s diagnosis followed years of misattributed symptoms. What began as chronic foot pain was initially diagnosed as plantar fasciitis, supported by imaging that showed bone spurs. For nearly two years, custom insoles seemed to manage her discomfort. In late 2021, however, Taylor noticed a growing mass on her left foot. After sudden swelling and an […]

A teal outline of a person next to the name "Taylor Duvall" in bold text on a yellow background, with the Synovial Sarcoma Foundation logo in the bottom right corner.

Thank You for Sharing Your Story

Please share any details of your journey that you feel comfortable with. By submitting your story, you allow the
Synovial Sarcoma Foundation to share it across our website, social media, and educational materials to help
support and inform others.

A smiling patient with a bald head and visible chest scars sits on a hospital bed next to a nurse. Both are smiling and holding up crossed fingers, with medical equipment visible in the background.

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