Every Story Shapes the Future

Behind every synovial sarcoma diagnosis is a person – and a circle of family and friends navigating
treatment, survivorship, or remembrance. These stories create connection, spark advocacy, and reveal
human side of research.

Whether you are in treatment, NED, living with recurrence, supporting someone you love, or honoring
someone you’ve lost – your story belongs here.

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MEET PATIENT

Irene Benton

Irene first noticed a lump in her right leg in 2019. An initial ultrasound suggested it was a benign lipoma, and she was advised not to worry. Over the next several years, the lump continued to cause intermittent discomfort. By 2025, the pain had increased significantly, and Irene felt strongly that something was not right. […]

A smiling woman with a blue face mask under her chin is shown next to the name “Irene Benton.” The Synovial Sarcoma Foundation logo and name appear in the lower left corner on a soft green background.

MEET PATIENT

Carrie Carpunky

Carrie first began experiencing unusual stomach pain in 2018, describing it as a gnawing sensation that often occurred when she had not eaten. At the time, she was under significant stress caring for family members and assumed the pain was related to an ulcer. After delaying medical care for nearly two years, worsening acid reflux […]

A woman with short brown hair smiles at the camera. Text reads "Carrie Carpunky." The Synovial Sarcoma Foundation logo is in the lower left corner. The background features green and yellow circular designs.

MEET PATIENT

Moon

Moon was ten years old when she noticed a lump on her left tibia that looked like a small ball. She lived with it for nine months because no one could determine what it was. At one point, doctors planned for an amputation, but during her hospitalization, her parents found an orthopedic specialist in another […]

Minimalist illustration with a teal outline of a person above a yellow box labeled "Moon." The Synovial Sarcoma Foundation logo appears in the bottom right corner of the image.

MEET PATIENT

Taylor Duvall

Taylor’s diagnosis followed years of misattributed symptoms. What began as chronic foot pain was initially diagnosed as plantar fasciitis, supported by imaging that showed bone spurs. For nearly two years, custom insoles seemed to manage her discomfort. In late 2021, however, Taylor noticed a growing mass on her left foot. After sudden swelling and an […]

A teal outline of a person next to the name "Taylor Duvall" in bold text on a yellow background, with the Synovial Sarcoma Foundation logo in the bottom right corner.

MEET PATIENT

W P Angelo

Angelo’s cancer was discovered in February 2025 after a biopsy of what was believed to be a simple abdominal cyst that had grown quickly. Initially, everything seemed normal, but internal bleeding required him to return to surgery the following day. The biopsy results took time, and by the time they arrived, nearly two months had […]

A simple line icon of a person above the name "W P Angelo" highlighted in yellow, with the Synovial Sarcoma Foundation logo and text in the bottom right corner on a light abstract background.

MEET PATIENT

Valerie

Valerie is currently NED (no evidence of disease), though the emotional weight of cancer remains a constant presence in her life. While scans show no active disease, she lives with ongoing scan anxiety-a reminder that survivorship can be just as complex as treatment itself. Valerie describes cancer as an isolating diagnosis, one that often goes […]

Minimalist graphic with an outline of a person above the name "Valerie" in bold on a yellow rectangle. The Synovial Sarcoma Foundation logo is in the lower right corner on a light green gradient background.

Thank You for Sharing Your Story

Please share any details of your journey that you feel comfortable with. By submitting your story, you allow the
Synovial Sarcoma Foundation to share it across our website, social media, and educational materials to help
support and inform others.