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    Latest News, Synovial Sarcoma Registry

    Celebrating Milestones with Hope: The 100th Sign-Up for the Synovial Sarcoma Registry and Biospecimen Repository

    December 23, 2025 ayushis Comments Off on Celebrating Milestones with Hope: The 100th Sign-Up for the Synovial Sarcoma Registry and Biospecimen Repository
    A smiling woman with short dark hair and a black shirt takes a selfie. Text reads "Carrie Carpunky." The Synovial Sarcoma Foundation’s name and logo appear in the bottom left corner.

    We are thrilled to announce a significant milestone for the Synovial Sarcoma Registry and Biospecimen Repository, as we proudly welcome our 100th registrant. This achievement signifies the growing commitment to advancing research and improving treatment options for patients with synovial sarcoma.

    The registry serves as a pivotal resource, collecting invaluable data and biospecimens from patients diagnosed with synovial sarcoma. By participating, patients contribute to a collective effort to understand this rare form of cancer better and develop innovative treatment plans that can lead to improved outcomes. Every registration helps researchers in their mission to tailor therapies more effectively, offering hope to individuals and families affected by this challenging condition.

    Meet Carrie Carpunky: Our 100th Registrant

    Among the many courageous individuals contributing to this critical endeavor is Carrie Carpunky, our milestone registrant. Carrie’s journey with cancer began in 2010, when she experienced persistent stomach pains attributed initially to stress and a possible ulcer. It wasn’t until she consulted a gastrointestinal specialist that the word “tumor” entered her reality, launching her into a whirlwind of tests, emotions, and eventually, a cancer diagnosis.

    A collage of five photos featuring a woman with brown hair, sometimes with a man or a younger woman, in various settings including outdoors, smiling selfies, and with a yellow “10 Years Free” shirt and red mask.

    Carrie’s story is one of resilience. After a partial gastrectomy procedure, she found herself grappling with the ramifications of her diagnosis. Yet through the ups and downs of her journey—including a tumor that remained localized against the odds and the anguish of watching her symptoms evolve—she found an incredible ally in her oncologist, Dr. Brian VanTine, who provided care and compassion throughout her experience.

    Following years of diligent monitoring and treatment, Carrie has reached a point where she goes for annual check-ups, underscoring the value of early intervention and unwavering support. The recent loss of Dr. VanTine deeply affected her. “He was more than my oncologist; he was a friend,” Carrie reflects, highlighting the bond that forms between patients and their healthcare providers.

    Get Involved

    We invite anyone diagnosed with synovial sarcoma to join the Synovial Sarcoma Registry and contribute to this crucial research effort. By participating, you are not only helping us build a comprehensive resource for researchers but also becoming part of a community that believes in the potential for better treatments and outcomes.

    To learn more about registering and participating in this vital initiative, please visit our official page: Synovial Sarcoma Registry.

    As we celebrate this milestone with Carrie and all our registrants, we renew our commitment to gathering insights that could drive breakthroughs in understanding synovial sarcoma. Together, we can make significant strides towards better therapies and, ultimately, a brighter future for those affected by this disease.

    Read Carrie’s journey here, and explore more stories from other patients by visiting our Patient Stories section. Each story offers a powerful reminder of the resilience within this community and the impact of collective participation in advancing research.

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    Recent posts

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      Why Every Tumor Sample Matters: What a New Sarcoma Biobank Study Means for Synovial Sarcoma
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    Related posts

    Hands wearing blue nitrile gloves draw liquid from a small glass vial into a syringe, with a rack of test tubes in the background.
    Latest News, Synovial Sarcoma Registry

    Why Every Tumor Sample Matters: What a New Sarcoma Biobank Study Means for Synovial Sarcoma

    October 28, 2026 ayushis Comments Off on Why Every Tumor Sample Matters: What a New Sarcoma Biobank Study Means for Synovial Sarcoma

    A new study in Advanced Science (October 12, 2026) shows what becomes possible when patients donate tumor tissue and researchers pair it with detailed clinical and genetic data. The same idea drives the Synovial Sarcoma Registry and Biorepository, and every patient who joins makes the next study possible. What the study found Over ten years, […]

    Close-up of blue gloved hands adjusting a microscope with two visible objective lenses, focusing on a glass slide in a laboratory setting.
    Education, Research

    The Cells Around the Tumor May Hold the Key to Improving Immunotherapy in Synovial Sarcoma

    September 14, 2026 ayushis Comments Off on The Cells Around the Tumor May Hold the Key to Improving Immunotherapy in Synovial Sarcoma

    A new study published in PLOS One by Ji-Yong Sung, Jin-Hong Kim, and Yi-Jun Kim from Seoul National University and Ewha Womans University, South Korea, examines a type of cell found in the tissue surrounding tumors, called cancer-associated fibroblasts (CAFs), and asks whether they can predict how a sarcoma patient will respond to immunotherapy. What […]

    A group photo collage introduces the Medical Advisory Board for the Synovial Sarcoma Foundation, featuring 11 professionals in business or medical attire, with the foundation's logo and branding text on a colorful background.
    Latest News

    Synovial Sarcoma Foundation Announces Formation of Medical Advisory Board

    June 22, 2026 ayushis Comments Off on Synovial Sarcoma Foundation Announces Formation of Medical Advisory Board

    11 Leading Oncologists and Researchers Unite to Accelerate Progress for Synovial Sarcoma Patients PHILADELPHIA [June 22, 2026] The Synovial Sarcoma Foundation (SSF) today announced the formation of its Medical Advisory Board, bringing together 11 internationally recognized clinicians and researchers to serve as the central coordinating body for synovial sarcoma research, treatment, and advocacy. The board […]

    The Synovial Sarcoma Foundation is a registered 501(c)(3) nonprofit organization. Tax ID number is 33-4027591. Contributions to the Synovial Sarcoma Foundation are tax-deductible to the extent permitted by law.

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