We Are Leading the Fight Against Synovial Sarcoma
Together, we will transform the future of care for all patients.
Take Action
Accelerate Breakthroughs & Inspire Hope
Fund Research
Help fund vital Synovial Sarcoma programs.
Contribute Data
Provide critical data to support life saving research.
Join Our Community
Connect with a global network of patients and caregivers.
Share Your Story
Your experiences, challenges and victories matter deeply.
Turning Experience into Impact
Eddie Cohen was diagnosed with synovial sarcoma in 2023 after a sudden medical
emergency while traveling abroad. A two-time
survivor with no evidence of disease (NED) today, he remains involved in patient advocacy through the Synovial Sarcoma Foundation, an effort inspired by his journey.
Synovial Sarcoma Foundation
Driving Hope, Research,
and Action.
Join us in the fight against synovial sarcoma. Learn more, get involved, and help bring hope to patients worldwide.
Prepare for Your Appointments
Our Patient Guide and First Appointment Questions were created by patients and families, with review from sarcoma specialists, to help you understand your diagnosis, prepare for your care team, and feel confident advocating for yourself.
Click on the preview to access them online or print them to bring to your next appointment.
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