Synovial Sarcoma Foundation Funds New Data Staff Scientist Position at CHOP
The Synovial Sarcoma Foundation is excited to announce that we have funded a new Data Staff Scientist position at Children’s Hospital of Philadelphia (CHOP), Philadelphia Campus, a major step forward in our mission to accelerate research and improve outcomes for patients with synovial sarcoma.
What This Role Will Do
The person selected for this role will lead the continued analysis of our patient registry, biorepository, and research data, working closely with teams across CHOP, Penn Medicine, and the Synovial Sarcoma Foundation. Based within CHOP’s Center for Precision Medicine for High-Risk Pediatric Cancer, this individual will oversee the scientific work behind our synovial sarcoma registry, which currently includes clinical, imaging, and pathologic data from more than 100 pediatric and adult patients.
The role will also help expand the registry to new sites, incorporate international patients, and integrate data from other institutional registries, work that is central to building the kind of large, well-characterized dataset that rare cancers like synovial sarcoma desperately need.
About the Synovial Sarcoma Registry & Biorepository
This new position will directly support the Synovial Sarcoma Registry and Biorepository, the only patient registry dedicated exclusively to synovial sarcoma, housed at CHOP in partnership with Penn Medicine. The registry collects clinical data, treatment history, imaging, genomic information, and biospecimens, including saliva or buccal swab samples, blood draws, and residual tumor tissue, from consenting patients.
The registry is open to patients worldwide and does not require travel to participate. SSF is currently collecting comprehensive clinical data from participants in Australia, Canada, Ireland, New Zealand, the United Kingdom, and the United States, and patients in all other countries are encouraged to complete the interest form to begin enrollment as we continue expanding global data collection.
To date, 150 participants have enrolled, contributing more than 2,000 imaging studies and 70 blood specimens. Participation in this registry represents one of the single most impactful ways individuals can contribute to advancing research, deepening scientific understanding, and accelerating progress for the entire synovial sarcoma community.
To enroll, visit redcap.link/synovialregistryconsent, or reach the registry team at SynovialSarcomaRegistry@chop.edu or +1 267-827-8145.
Learn more at research.chop.edu/synovial-sarcoma-registry-biospecimen-repository or on the SSF website.
If you know a qualified researcher who might be a strong fit for this role, we encourage you to share this opportunity. To view the full job posting and apply, visit the CHOP careers page.
