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    Rare Cancer

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    A smiling woman with short dark hair and a black shirt takes a selfie. Text reads "Carrie Carpunky." The Synovial Sarcoma Foundation’s name and logo appear in the bottom left corner.
    Latest News, Synovial Sarcoma Registry

    Celebrating Milestones with Hope: The 100th Sign-Up for the Synovial Sarcoma Registry and Biospecimen Repository

    December 23, 2025 ayushis Comments Off on Celebrating Milestones with Hope: The 100th Sign-Up for the Synovial Sarcoma Registry and Biospecimen Repository

    We are thrilled to announce a significant milestone for the Synovial Sarcoma Registry and Biospecimen Repository, as we proudly welcome our 100th registrant. This achievement signifies the growing commitment to advancing research and improving treatment options for patients with synovial sarcoma. The registry serves as a pivotal resource, collecting invaluable data and biospecimens from patients […]

    A doctor in a white coat with a stethoscope around their neck holds a digital tablet, standing near a window. Only the upper body is visible. Another hand is blurred in the foreground.
    Research, Latest News

    New Market Insights Highlight Growth in Synovial Sarcoma Treatments

    September 10, 2025 joshs Comments Off on New Market Insights Highlight Growth in Synovial Sarcoma Treatments

    The Synovial Sarcoma Foundation is committed to staying informed on the latest research and developments in this rare and aggressive cancer. A recent market report indicates that the global synovial sarcoma market is projected to grow significantly, reaching an estimated USD 420 million by 2034 — up from USD 245 million in 2024, at a […]

    A smiling woman with glasses holds an award plaque in front of a backdrop featuring “CONQUER CANCER,” “RESEARCH CONQUERS CANCER,” and Synovial Sarcoma Foundation logos from The ASCO Foundation.
    CHOP, Development, Dr. Theodore Laetsch, Research

    Synovial Sarcoma Foundation Celebrates Groundbreaking Achievement by Rachel Dr. Hurly

    June 3, 2025 joshs Comments Off on Synovial Sarcoma Foundation Celebrates Groundbreaking Achievement by Rachel Dr. Hurly

    The Synovial Sarcoma Foundation is proud to announce a significant milestone in pediatric cancer research: Dr. Rachel Hurly, a dedicated pediatric oncology fellow from the Children’s Hospital of Philadelphia (CHOP), has been honored with the prestigious American Society of Clinical Oncology (ASCO) Young Investigator Award. Dr. Hurly conducts her research under the mentorship of Dr. Ted Laetsch at the Haldor Laboratory at the University of Pennsylvania, with support from the Synovial Sarcoma Fund.

    A smiling race car driver stands on a racetrack at Super Lap Battle 2025, holding a bottle and a blue award banner with "2025" and a "2" on it. FASTx Autosport cars and a scoreboard are visible in the background under a clear sky.
    Black Flag Racing

    Callan Spence: Survivor. Driver. Relentless Advocate.

    April 16, 2025 joshs Comments Off on Callan Spence: Survivor. Driver. Relentless Advocate.

    Callan Spence isn’t waiting for progress—he’s chasing it down at full speed. At 20 years old, Callan is already a two-time synovial sarcoma fighter. But to see him now—helmet on, strapping into a 1,000-horsepower Lotus Exige—you’d never guess that this young man was once told he might not survive high school. In 2021, at just […]

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    Recent posts

    • Two doctors examine X-ray images of a human skull, one in profile and one facing forward, while discussing the results in a well-lit medical setting.
      Rare Cranial Synovial Sarcoma Case Highlights Importance of Accurate Diagnosis
    • A collage of conference scenes: group photo, small group with certificate, speakers at podiums, attentive audience in a tiered auditorium, and conference banners displayed.
      Synovial Sarcoma Foundation Wins First Place at the 16th Annual SPAGN Conference
    • A collage with two photos: on the left, three people pose and smile outdoors by the ocean and rocky coastline; on the right, a person stands in front of a colorful wall display titled "A Journey of the Heart.
      Synovial Sarcoma Foundation Welcomes Lucia and Roberto Belluco to the Board of Directors

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    Advocacy in Action Afami-cel biomarker testing biomarker testing synovial sarcoma CHOP clinical trials rare cancer FDA approved cancer therapy fungal infection immunotherapy metastatic synovial sarcoma lung new treatments for synovial sarcoma pediatric synovial sarcoma pericardial synovial sarcoma Rare Cancer rare cancer clinical trials Rare Cancer Europe rare cancer research rare cardiac tumor rare disease drug development rare disease funding rare fungal infections in cancer patients rare pediatric cancer rare soft tissue sarcoma research soft tissue sarcoma symptoms soft tissue sarcoma testing solitary fibrous tumor SPAGN SS18-SSX translocation SS18::SSX STAT6 marker SFT Synovial Sarcoma synovial sarcoma clinical trials synovial sarcoma diagnosis Synovial Sarcoma Europe Synovial Sarcoma Foundation synovial sarcoma in children Synovial Sarcoma Italy synovial sarcoma research synovial sarcoma symptoms synovial sarcoma treatment targeted therapy T Cell TECELRA webinar

    The Synovial Sarcoma Foundation is a registered 501(c)(3) nonprofit organization. Tax ID number is 33-4027591. Contributions to the Synovial Sarcoma Foundation are tax-deductible to the extent permitted by law.

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