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    Europe Expansion, Latest News

    Synovial Sarcoma Foundation Welcomes Lucia and Roberto Belluco to the Board of Directors

    April 29, 2026 ayushis Comments Off on Synovial Sarcoma Foundation Welcomes Lucia and Roberto Belluco to the Board of Directors
    A collage with two photos: on the left, three people pose and smile outdoors by the ocean and rocky coastline; on the right, a person stands in front of a colorful wall display titled "A Journey of the Heart.

    [Philadelphia, PA] The Synovial Sarcoma Foundation (SSF) is honored to welcome Lucia Manzinello Belluco and Roberto Belluco to its Board of Directors as the organization’s first European board members. Their appointment marks an important step in expanding the foundation’s international reach and strengthening collaboration across the global synovial sarcoma community.

    Lucia brings more than 20 years of experience working in the healthcare sector in Italy as a biomedical laboratory technician specializing in histopathology. Throughout her career, she has supported diagnostic and surgical pathology teams, managing high-volume tissue preparation, complex staining protocols, immunohistochemistry procedures, and laboratory quality control essential to accurate diagnosis.

    Lucia and Roberto’s connection to synovial sarcoma is deeply personal. Their daughter Teresa Belluco was diagnosed at age 13, leading the family to travel from Italy to MD Anderson Cancer Center in Houston so she could participate in an early-phase T-cell immunotherapy clinical trial. During this time, Lucia also helped connect and support families navigating rare cancer treatment across the United States and Italy.

    A collage of four photos shows a young boy in the hospital with family, the family posing by the coast, the boy and two men smiling in a hospital room, and the boy standing by a colorful “Journey of the Heart” sign.

    After Teresa’s passing in June 2024, the Belluco family honored her legacy by supporting research that could change the future for other patients. In 2024, they donated $173,000 to advance synovial sarcoma research, supporting initiatives aimed at improving surgical precision, expanding clinical research, and accelerating the development of new therapies.

    As members of the board, Lucia and Roberto will focus on growing the foundation’s network across Italy and Europe. Their efforts will support the expansion of Synovial Sarcoma Registry and Biorepository, and the International Synovial Sarcoma Tumor Board by connecting leading clinicians, research centers, and patients and families affected by synovial sarcoma.

    “We are incredibly grateful to welcome Lucia and Roberto to the SSF Board. Their courage, generosity, and dedication to honoring Teresa’s legacy embody the spirit of this community. Their leadership will help expand our international network and accelerate progress in synovial sarcoma research.” said Chas Spence, Founder and Executive Director of the Synovial Sarcoma Foundation. 

    The Synovial Sarcoma Foundation invites the community to join us in welcoming Lucia and Roberto Belluco. You can learn more by visiting our Board of Directors page.

    For more information about the Synovial Sarcoma Foundation, please visit SynovialSarcoma.org.

    ayushis

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    In Conversation with Kaela: How Research Gave a Mom of Two a Second Chance at Life

    August 11, 2026 ayushis Comments Off on In Conversation with Kaela: How Research Gave a Mom of Two a Second Chance at Life

    Kaela Graham-Bowman’s story reached national audiences this year when she was featured on 60 Minutes Australia. An Afghanistan veteran and nurse, Kaela was diagnosed with synovial sarcoma in 2020 at age 28, while working as an oncology nurse herself. What followed was a six-year fight through surgery, chemotherapy, a devastating relapse, and eventually a groundbreaking […]

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    Synovial Sarcoma Foundation Funds New Data Staff Scientist Position at CHOP

    June 30, 2026 ayushis Comments Off on Synovial Sarcoma Foundation Funds New Data Staff Scientist Position at CHOP

    The Synovial Sarcoma Foundation is excited to announce that we have funded a new Data Staff Scientist position at Children’s Hospital of Philadelphia (CHOP), Philadelphia Campus, a major step forward in our mission to accelerate research and improve outcomes for patients with synovial sarcoma. What This Role Will Do The person selected for this role […]

    A group photo collage introduces the Medical Advisory Board for the Synovial Sarcoma Foundation, featuring 11 professionals in business or medical attire, with the foundation's logo and branding text on a colorful background.
    Latest News

    Synovial Sarcoma Foundation Announces Formation of Medical Advisory Board

    June 22, 2026 ayushis Comments Off on Synovial Sarcoma Foundation Announces Formation of Medical Advisory Board

    11 Leading Oncologists and Researchers Unite to Accelerate Progress for Synovial Sarcoma Patients PHILADELPHIA [June 22, 2026] The Synovial Sarcoma Foundation (SSF) today announced the formation of its Medical Advisory Board, bringing together 11 internationally recognized clinicians and researchers to serve as the central coordinating body for synovial sarcoma research, treatment, and advocacy. The board […]

    The Synovial Sarcoma Foundation is a registered 501(c)(3) nonprofit organization. Tax ID number is 33-4027591. Contributions to the Synovial Sarcoma Foundation are tax-deductible to the extent permitted by law.

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