Synovial sarcoma is a rare and aggressive soft tissue cancer that most often develops near the joints of the arms or legs. In very rare cases, however, it can appear in unusual locations — including the skull and brain region. A newly published case report…
We are incredibly honored to share that the Synovial Sarcoma Foundation received First Place in the Advocacy in Action Award at the 16th Annual SPAGN Conference in Stockholm, Sweden. Hosted by the Sarcoma Patient Advocacy Global Network (SPAGN), this award recognizes advocacy initiatives making a…
Synovial Sarcoma Foundation Welcomes Lucia and Roberto Belluco to the Board of Directors
[Philadelphia, PA] The Synovial Sarcoma Foundation (SSF) is honored to welcome Lucia Manzinello Belluco and Roberto Belluco to its Board of Directors as the organization’s first European board members. Their appointment marks an important step in expanding the foundation’s international reach and strengthening collaboration across…
New Market Insights Highlight Growth in Synovial Sarcoma Treatments
The Synovial Sarcoma Foundation is committed to staying informed on the latest research and developments in this rare and aggressive…
Tumor Board Continues to Grow with New Members to Advance Breakthrough Treatments for Synovial Sarcoma Patients
We are proud to share that the Tumor Board now includes 42 participating institutions, strengthening our collective expertise and reach.…
Synovial Sarcoma Foundation Celebrates Groundbreaking Achievement by Rachel Dr. Hurly
The Synovial Sarcoma Foundation is proud to announce a significant milestone in pediatric cancer research: Dr. Rachel Hurly, a dedicated…
Callan Spence: Survivor. Driver. Relentless Advocate.
Callan Spence isn’t waiting for progress—he’s chasing it down at full speed. At 20 years old, Callan is already a…
Inaugural Synovial Sarcoma Conference
On March 1, CHOP, in collaboration with Penn Medicine and the Synovial Sarcoma Foundation, hosted the first-ever national virtual conference…
The Synovial Sarcoma Foundation Surpasses $2 Million in Research Funding
Thanks to the generosity of donors and supporters, the Fund has now raised over $2 million, accelerating research initiatives at…
First-Ever Synovial Sarcoma Conference to Bring Together Patients, Researchers, and Experts in a Landmark Event
PHILADELPHIA, PA, UNITED STATES, February 20, 2025 — The Synovial Sarcoma Foundation is proud to announce that Children’s Hospital of Philadelphia…
Synovial Sarcoma Registry Reaches New Milestone
The Synovial Sarcoma Registry, launched in partnership with the Children’s Hospital of Philadelphia (CHOP), continues to grow as a critical…
Black Flag Sarcoma Race Team Takes the Track for Awareness
The Black Flag Sarcoma Race Team is shifting into high gear, using motorsports as a platform to raise awareness for…
