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Callan Spence isn’t waiting for progress—he’s chasing it down at full speed. At 20 years old, Callan is already a two-time synovial sarcoma fighter. But to see him now—helmet on, strapping into a 1,000-horsepower Lotus Exige—you’d never guess that this young man was once told he might not survive high school. In 2021, at just […]
On March 1, CHOP, in collaboration with Penn Medicine and the Synovial Sarcoma Foundation, hosted the first-ever national virtual conference dedicated solely to synovial sarcoma. More than 100 patients, caregivers, researchers, and clinicians attended the event, which featured expert presentations, research updates, and live discussions. The Synovial Sarcoma Foundation is dedicated to advancing research and […]
Thanks to the generosity of donors and supporters, the Fund has now raised over $2 million, accelerating research initiatives at CHOP and Penn Medicine. These funds are driving critical advancements in patient care, clinical trials, and the development of future treatment strategies. This milestone represents a major step forward in expanding Synovial Sarcoma research, allowing […]
PHILADELPHIA, PA, UNITED STATES, February 20, 2025 — The Synovial Sarcoma Foundation is proud to announce that Children’s Hospital of Philadelphia (CHOP) and Penn Medicine—global leaders in synovial sarcoma research—are hosting the first-ever conference dedicated to this rare and aggressive cancer. This landmark event will focus on the latest advances in research and treatment for both pediatric and […]
The Synovial Sarcoma Registry, launched in partnership with the Children’s Hospital of Philadelphia (CHOP), continues to grow as a critical resource for advancing research and improving patient care. To date, the registry has compiled an extensive dataset, including over 1,800 imaging studies, 96 outside medical records, 42 blood specimens, and 29 tissue specimens, with four […]
The Black Flag Sarcoma Race Team is shifting into high gear, using motorsports as a platform to raise awareness for Synovial Sarcoma. The team’s new Super Lap Battle Lotus, will be wrapped with the molecular structure of TumorGlow, the groundbreaking imaging technology being developed at Penn Medicine to improve tumor detection during surgery. This initiative […]
The National Synovial Sarcoma Tumor Board, funded by the Spence Family Synovial Sarcoma Foundation, has become an essential collaborative hub for leading medical institutions across the country. This initiative, launched in partnership with CHOP and Penn Medicine, brings together top specialists to discuss complex Synovial Sarcoma cases, ensuring that patients receive expert-reviewed treatment recommendations regardless […]
Teresa Belluco was just 13 years old when she received a devastating diagnosis—synovial sarcoma, a rare and aggressive cancer that few had even heard of. A talented gymnast from Villafranca Padovana, Italy, she was full of life, ambition, and determination. But rather than allowing her illness to define her, Teresa chose to fight with everything […]