Skip to content
synovial sarcoma foundation
  • About
    • Mission
    • Initiatives
    • Affiliations
    • Leadership
    • Board of Directors
    • Medical Advisory Board
    • Careers
  • Resources
    • Synovial Sarcoma FAQ
    • Treatments
    • Clinical Trials & Therapies
    • Synovial Sarcoma Patient Survey
    • Synovial Sarcoma Tumor Board
    • Patient Stories
    • Patient Resources
    • Eddie’s Story
    • Video Resources
    • SSF Ambassador Program
  • Research Programs
    • Clinical Research
    • Tumor Glow
    • Synovial Sarcoma Registry
  • Latest News
Donate

Send us a note

Please fill out the form below and we will gladly respond as soon as possible.



    Synovial Sarcoma Conference

    Inaugural Synovial Sarcoma Conference

    April 7, 2025 joshs Comments Off on Inaugural Synovial Sarcoma Conference
    A man in a gray suit sits in a modern, well-lit office lounge. Text on the image reads: "Dr. Theodore Laetsch, Lead Investigator & Medical Director, SSF." Blue chairs and large windows are in the background.

    On March 1, CHOP, in collaboration with Penn Medicine and the Synovial Sarcoma Foundation, hosted the first-ever national virtual conference dedicated solely to synovial sarcoma. More than 100 patients, caregivers, researchers, and clinicians attended the event, which featured expert presentations, research updates, and live discussions.

    The Synovial Sarcoma Foundation is dedicated to advancing research and support for patients affected by this rare form of cancer.

    Conference Recording: 

    View the complete conference recording: Watch Video
    Review presentation slides from featured speakers: View Presentations
    Read answers to participant-submitted questions: Read Q&A

    • CHOP
    • Conference
    • Penn Medicine
    joshs

    Post navigation

    Previous
    Next

    Search

    Categories

    • Black Flag Racing (2)
    • Case Study (4)
    • Children (1)
    • CHOP (3)
    • Clinical Trial (3)
    • Development (11)
    • Dr. Theodore Laetsch (3)
    • Education (26)
    • Europe Expansion (1)
    • Healthcare (13)
    • Latest News (22)
    • Patient Story (1)
    • Programs (1)
    • Rare Cancer (7)
    • Rare Cancer Funding (2)
    • Research (21)
    • SSF Ambassador Program (1)
    • Synovial Sarcoma Conference (2)
    • Synovial Sarcoma Registry (7)
    • Teresa Belluco (1)
    • Tumor Board (2)

    Recent posts

    • Hands wearing blue nitrile gloves draw liquid from a small glass vial into a syringe, with a rack of test tubes in the background.
      Why Every Tumor Sample Matters: What a New Sarcoma Biobank Study Means for Synovial Sarcoma
    • Webinar recording poster titled “Inside the Synovial Sarcoma Foundation” featuring speakers Nathan Imperiale and Philip Leider, recorded October 9, 2026, and sponsored by US WorldMeds.
      Two Leaders, One Mission: Nathan Imperiale and Philip Leider on Synovial Sarcoma
    • Transparent blue spheres with molecular structures inside float near visible DNA double helix strands, creating a scientific and futuristic background focused on genetics and biotechnology.
      Synovial Sarcoma of the Hyoid Bone: A Rare Case

    Tags

    #AYACancer #CancerResearch #ClinicalTrials #Immunotherapy #KnowYourOptions #MAGEA4 #NYESO1 #PatientAdvocacy #RareCancer #RareDisease #Sarcoma #SarcomaAwareness #SarcomaCommunity #SoftTissueSarcoma #SynovialSarcoma #SynovialSarcomaFoundation Afami-cel Afamitresgene autoleucel Cancer Research CHOP immunotherapy MAGE-A4 synovial sarcoma NY-ESO-1 synovial sarcoma Rare Cancer rare cancer research rare soft tissue sarcoma research sarcoma research sarcoma treatment soft tissue sarcoma solitary fibrous tumor Synovial Sarcoma synovial sarcoma biomarker testing synovial sarcoma case report synovial sarcoma diagnosis Synovial Sarcoma Foundation synovial sarcoma misdiagnosis synovial sarcoma registry synovial sarcoma research synovial sarcoma treatment T-Cell Therapy targeted therapy TECELRA Tecelra synovial sarcoma webinar

    Related posts

    Hands wearing blue nitrile gloves draw liquid from a small glass vial into a syringe, with a rack of test tubes in the background.
    Latest News, Synovial Sarcoma Registry

    Why Every Tumor Sample Matters: What a New Sarcoma Biobank Study Means for Synovial Sarcoma

    October 28, 2026 ayushis Comments Off on Why Every Tumor Sample Matters: What a New Sarcoma Biobank Study Means for Synovial Sarcoma

    A new study in Advanced Science (October 12, 2026) shows what becomes possible when patients donate tumor tissue and researchers pair it with detailed clinical and genetic data. The same idea drives the Synovial Sarcoma Registry and Biorepository, and every patient who joins makes the next study possible. What the study found Over ten years, […]

    Close-up of blue gloved hands adjusting a microscope with two visible objective lenses, focusing on a glass slide in a laboratory setting.
    Education, Research

    The Cells Around the Tumor May Hold the Key to Improving Immunotherapy in Synovial Sarcoma

    September 14, 2026 ayushis Comments Off on The Cells Around the Tumor May Hold the Key to Improving Immunotherapy in Synovial Sarcoma

    A new study published in PLOS One by Ji-Yong Sung, Jin-Hong Kim, and Yi-Jun Kim from Seoul National University and Ewha Womans University, South Korea, examines a type of cell found in the tissue surrounding tumors, called cancer-associated fibroblasts (CAFs), and asks whether they can predict how a sarcoma patient will respond to immunotherapy. What […]

    A doctor in a white coat with a stethoscope around their neck holds a tablet device, standing in a medical setting with a patient lying on a bed in the background.
    Education, Healthcare

    Rare Tumor Mimics Synovial Sarcoma: Why Accurate Diagnosis Matters

    April 17, 2026 ayushis Comments Off on Rare Tumor Mimics Synovial Sarcoma: Why Accurate Diagnosis Matters

    A recent case report highlights a rare GLI1-altered mesenchymal tumor presenting in the pleura (lining of the lung), a location where tumors can closely resemble synovial sarcoma. This case underscores a critical challenge in rare cancers — different tumors can appear similar under imaging and even under the microscope, making accurate diagnosis essential for appropriate […]

    The Synovial Sarcoma Foundation is a registered 501(c)(3) nonprofit organization. Tax ID number is 33-4027591. Contributions to the Synovial Sarcoma Foundation are tax-deductible to the extent permitted by law.

    • Terms & conditions
    • Privacy policy
    synovial sarcoma foundation
    • community@synovialsarcoma.org
    1025 Thomas Jefferson St. NW, Suite W-3200, Washington DC 20007
    Facebook-f X-twitter Linkedin

    Navigation

    • About
    • Research Programs
    • Patient Stories
    • Resources

    Stay in touch