Synovial Sarcoma Foundation Launches Ambassador Program During Childhood Cancer Awareness Month
New program invites patients, survivors, caregivers, and families to turn lived experience into advocacy.
[Philadelphia, PA], September 1, 2026: This Childhood Cancer Awareness Month, the Synovial Sarcoma Foundation (SSF) is inviting patients, survivors, caregivers, and supporters to take their advocacy further. SSF has officially launched its Ambassador Program, an ongoing initiative for anyone connected to synovial sarcoma, a rare cancer that too few doctors recognize on sight, who wants to help raise awareness, grow research funding, and stand alongside families facing this disease.
The program welcomes people in four ways: patients and survivors who want to put their own story to work, caregivers and family members drawing on what they’ve lived through, those honoring a loved one lost to synovial sarcoma, and community supporters who want to spread the word closer to home. Involvement is flexible, and every ambassador decides for themselves how much, and what, to share.
Leading the program as its first ambassador is 9-year-old Jonathan, diagnosed with synovial sarcoma in 2025. Even mid-treatment, Jonathan has been vocal about wanting other kids facing the disease to know they’re not alone, and about hoping his experience helps doctors catch it sooner in the next child. He’s joined by three ambassadors further along in their own journeys: Tessa Holyoak, whose diagnosis came only after months of being dismissed by doctors; Eldiara Doucette, who was told she was too young for cancer before hers was found; and Kaela Graham-Bowman, an Army veteran and oncology nurse who has continued advocating for the community throughout her own treatment. Learn more about the voices of SSF here.
“Every one of our ambassadors chose to speak up so the next person facing this disease doesn’t have to face it alone,” said Nathan Imperiale, Board Chairman, SSF.
Get involved
Patients, survivors, caregivers, and supporters can learn more and apply to become an ambassador at synovialsarcoma.org/ambassador-program.
In honor of Childhood Cancer Awareness Month, we invite you to support kids and families facing synovial sarcoma directly through SSF’s awareness month fundraiser at givebutter.com/SSFChildhoodCancerAwarenessMonth.
About the Synovial Sarcoma Foundation
The Synovial Sarcoma Foundation is a 501(c)(3) nonprofit dedicated to raising awareness, funding research, and supporting patients and families affected by synovial sarcoma. Learn more at synovialsarcoma.org.
