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Synovial Sarcoma Foundation Welcomes Julie Kramer as Community Engagement & Partnerships Manager

December 12, 2025 Comments Off on Synovial Sarcoma Foundation Welcomes Julie Kramer as Community Engagement & Partnerships Manager
A woman with shoulder-length brown hair and a yellow top smiles softly indoors, with sunlight streaming through large windows covered by bamboo blinds and white curtains in the background.

Current Patient to Drive Relationships and Support for the Synovial Sarcoma Community

[Philadelphia, PA] – 12/12/25 – The Synovial Sarcoma Foundation (SSF) is thrilled to announce the appointment of Julie Kramer as our new Community Engagement & Partnerships Manager. With a wealth of experience in advocacy and nonprofit communications, and as a survivor of synovial sarcoma, Julie is uniquely equipped to support the foundation’s mission and the needs of our patient community.

Diagnosed in 2014, Julie navigated her diagnosis through multiple treatments and has been NED (No Evidence of Disease) since 2017 after being treated for her third recurrence. Her journey has empowered her to advocate for others facing similar challenges, making her a meaningful voice within the cancer community. Julie’s commitment to educating and supporting those affected by synovial sarcoma was showcased on national television when she appeared on The Ellen DeGeneres Show, bringing awareness to this rare cancer.

In her new role at SSF, Julie will work to strengthen research collaborations and industry partnerships, expand outreach to patients and caregivers, and enhance engagement within our growing community. Her resilience and passion for support will be pivotal as the foundation continues its mission to improve the lives of those affected by synovial sarcoma.

A collage of five images showing a woman at various stages: smiling, with a young child outside, in a hospital gown with medical equipment, in bed post-surgery, and with a group at a cancer center reception.

“We are honored to welcome Julie to our team,” said Chas Spence, Executive Director of the Synovial Sarcoma Foundation. “Her personal experience and professional expertise will be invaluable as we strive to create a supportive network for patients and their families facing this challenging diagnosis.”

The Synovial Sarcoma Foundation encourages everyone in the community to join us in welcoming Julie Kramer. We are grateful for the heart, experience, and hope she brings to our organization.

For additional information about Julie or the Synovial Sarcoma Foundation, please visit SynovialSarcoma.org.

You can learn more about Julie’s journey by following her on Instagram.

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