Synovial Sarcoma Registry Reaches New Milestone

The Synovial Sarcoma Registry, launched in partnership with the Children’s Hospital of Philadelphia (CHOP), continues to grow as a critical resource for advancing research and improving patient care. To date, the registry has compiled an extensive dataset, including over 1,800 imaging studies, 96 outside medical records, 42 blood specimens, and 29 tissue specimens, with four specimens transplanted into mice for further study. Currently, 60 patients have officially enrolled, providing valuable clinical insights that researchers are using to identify trends in diagnosis, treatment response, and long-term outcomes.

By consolidating patient-reported data, biospecimen samples, and treatment histories, the registry offers an invaluable tool for clinicians and researchers working to refine therapies and develop new clinical trials. The goal is to improve treatment protocols, personalize care strategies, and accelerate access to emerging therapies that may lead to better outcomes for Synovial Sarcoma patients.

With continued patient participation, the registry is poised to play a pivotal role in shaping the future of Synovial Sarcoma research. Families and individuals diagnosed with this rare cancer are encouraged to contribute by enrolling in the registry and helping researchers push the boundaries of what’s possible in treatment and care.

For more information or to participate, visit here.