Diagnosed in July 2021 after discovering a cyst-like bump behind her left knee, initially assumed to be a sports-related injury. After a month of testing, scans, and a biopsy, a 7 cm synovial sarcoma was confirmed. It was localized and had not spread. Jena chose treatment at Thomas Jefferson University Hospital in Philadelphia with Dr. […]

Diagnosed in August 2021 after experiencing a small cough she attributed to “summer allergies.” Her family doctor listened to her lungs and said, “I don’t hear anything.” But Lisa had what she refers to as a “divine intuition” and requested an X-ray. The X-ray spotted a mass, and she was rushed to a CT scan, […]

Diagnosed in November 2021 at age 36 after experiencing severe neck pain and noticing a palpable lump. A 5 cm synovial sarcoma tumor was found at the base of his skull. Dr. Yash Patil with UC Health successfully removed the tumor, along with some of the skull and surrounding musculature. After clear margins were achieved, […]

Diagnosed with synovial sarcoma in the left knee in August 2018 at the age of 8. She was misdiagnosed by multiple physicians for two years. A local surgeon agreed to remove the 3 cm tumor, and a biopsy revealed synovial sarcoma with positive surgical margins. The tumor was superficially located directly on top of her […]

Diagnosed in July 2021 at the age of 12 after feeling a lump in her left cheek. An x-ray, ultrasound, and MRI at CHOP revealed a mass. A biopsy confirmed it as synovial sarcoma. The 5.5 cm tumor was successfully removed at CHOP by Dr. Ken Kazahaya without nerve damage. Shortly after, Katie began chemotherapy. […]

Diagnosed with Synovial Sarcoma in December 2016 after a 10 cm tumor was found in her pelvic wall during a routine OB-GYN appointment. Thinking it was a fibroid, surgery was performed to remove it. Upon opening her up, the doctor realized it was more than just a fibroid, took a biopsy, and sewed her back […]