Every Story Shapes the Future
Behind every synovial sarcoma diagnosis is a person – and a circle of family and friends navigating
treatment, survivorship, or remembrance. These stories create connection, spark advocacy, and reveal
human side of research.
Whether you are in treatment, NED, living with recurrence, supporting someone you love, or honoring
someone you’ve lost – your story belongs here.
Filter Patient Stories By:
MEET PATIENT
Lisa O’Brien
Diagnosed with synovial sarcoma of the lower middle left lung lobe (4.8 cm) in April 2020. She had zero symptoms, and the tumor was found by accident. The lower left lobe was removed through Northern Kaiser California by thoracic surgeon Dr. Jeffrey Velotta (not a sarcoma specialist, as she didn’t know it was synovial sarcoma […]
MEET PATIENT
Steven Moreda
Diagnosed with synovial sarcoma in the right arm growing into his median nerve in November 2002 at age 37. A 5 cm tumor was removed at a local hospital after being assured it was a ‘fluid-filled benign cyst.’ Pathology determined it was synovial sarcoma. Steven sought treatment at MD Anderson and received care locally at […]
MEET PATIENT
Jena Tracey
Diagnosed in July 2021 after discovering a cyst-like bump behind her left knee, initially assumed to be a sports-related injury. After a month of testing, scans, and a biopsy, a 7 cm synovial sarcoma was confirmed. It was localized and had not spread. Jena chose treatment at Thomas Jefferson University Hospital in Philadelphia with Dr. […]
MEET PATIENT
Lisa Brown
Diagnosed in August 2021 after experiencing a small cough she attributed to “summer allergies.” Her family doctor listened to her lungs and said, “I don’t hear anything.” But Lisa had what she refers to as a “divine intuition” and requested an X-ray. The X-ray spotted a mass, and she was rushed to a CT scan, […]
MEET PATIENT
Andrew Thomas McNichols
Diagnosed in November 2021 at age 36 after experiencing severe neck pain and noticing a palpable lump. A 5 cm synovial sarcoma tumor was found at the base of his skull. Dr. Yash Patil with UC Health successfully removed the tumor, along with some of the skull and surrounding musculature. After clear margins were achieved, […]
MEET PATIENT
Ciara Husing
Diagnosed with synovial sarcoma in the left knee in August 2018 at the age of 8. She was misdiagnosed by multiple physicians for two years. A local surgeon agreed to remove the 3 cm tumor, and a biopsy revealed synovial sarcoma with positive surgical margins. The tumor was superficially located directly on top of her […]
Thank You for Sharing Your Story
Please share any details of your journey that you feel comfortable with. By submitting your story, you allow the
Synovial Sarcoma Foundation to share it across our website, social media, and educational materials to help
support and inform others.
