Every Story Shapes the Future

Behind every synovial sarcoma diagnosis is a person – and a circle of family and friends navigating
treatment, survivorship, or remembrance. These stories create connection, spark advocacy, and reveal
human side of research.

Whether you are in treatment, NED, living with recurrence, supporting someone you love, or honoring
someone you’ve lost – your story belongs here.

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MEET PATIENT

Lisa O’Brien

Diagnosed with synovial sarcoma of the lower middle left lung lobe (4.8 cm) in April 2020. She had zero symptoms, and the tumor was found by accident. The lower left lobe was removed through Northern Kaiser California by thoracic surgeon Dr. Jeffrey Velotta (not a sarcoma specialist, as she didn’t know it was synovial sarcoma […]

A simple graphic features a teal outline of a person above the name "Lisa O’Brien" in bold yellow text, with the Synovial Sarcoma Foundation logo at the bottom right. The background is light with abstract green circles.

MEET PATIENT

Steven Moreda

Diagnosed with synovial sarcoma in the right arm growing into his median nerve in November 2002 at age 37. A 5 cm tumor was removed at a local hospital after being assured it was a ‘fluid-filled benign cyst.’ Pathology determined it was synovial sarcoma. Steven sought treatment at MD Anderson and received care locally at […]

A simple graphic with a teal outline of a person above the name "Steven Moreda" highlighted in yellow. In the bottom right corner is the Synovial Sarcoma Foundation logo.

MEET PATIENT

Jena Tracey

Diagnosed in July 2021 after discovering a cyst-like bump behind her left knee, initially assumed to be a sports-related injury. After a month of testing, scans, and a biopsy, a 7 cm synovial sarcoma was confirmed. It was localized and had not spread. Jena chose treatment at Thomas Jefferson University Hospital in Philadelphia with Dr. […]

Simple line drawing of a person above the name "Jena Tracey" highlighted in yellow. In the bottom right corner, the Synovial Sarcoma Foundation logo appears on a light green background.

MEET PATIENT

Lisa Brown

Diagnosed in August 2021 after experiencing a small cough she attributed to “summer allergies.” Her family doctor listened to her lungs and said, “I don’t hear anything.” But Lisa had what she refers to as a “divine intuition” and requested an X-ray. The X-ray spotted a mass, and she was rushed to a CT scan, […]

A simple illustration of a person above the name "Lisa Brown" highlighted in yellow, with the Synovial Sarcoma Foundation logo in the bottom right corner on a light gradient background.

MEET PATIENT

Andrew Thomas McNichols

Diagnosed in November 2021 at age 36 after experiencing severe neck pain and noticing a palpable lump. A 5 cm synovial sarcoma tumor was found at the base of his skull. Dr. Yash Patil with UC Health successfully removed the tumor, along with some of the skull and surrounding musculature. After clear margins were achieved, […]

Graphic with a simple outline of a person above the name "Andrew Thomas McNichols" highlighted in yellow, with the Synovial Sarcoma Foundation logo in the bottom right corner.

MEET PATIENT

Ciara Husing

Diagnosed with synovial sarcoma in the left knee in August 2018 at the age of 8. She was misdiagnosed by multiple physicians for two years. A local surgeon agreed to remove the 3 cm tumor, and a biopsy revealed synovial sarcoma with positive surgical margins. The tumor was superficially located directly on top of her […]

A simple outline of a person above the name "Ciara Husing" in bold text with the Synovial Sarcoma Foundation logo in the bottom right corner on a light background with circular gradients.

Thank You for Sharing Your Story

Please share any details of your journey that you feel comfortable with. By submitting your story, you allow the
Synovial Sarcoma Foundation to share it across our website, social media, and educational materials to help
support and inform others.

A smiling patient with a bald head and visible chest scars sits on a hospital bed next to a nurse. Both are smiling and holding up crossed fingers, with medical equipment visible in the background.

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