MEET PATIENT

Moon

Minimalist illustration with a teal outline of a person above a yellow box labeled "Moon." The Synovial Sarcoma Foundation logo appears in the bottom right corner of the image.

Location

Italy

Primary Tumor Location(s)

Bone, Other

Metastasis or Recurrence Location(s)

Other

Surgery(s)

n/a

Chemotherapy

n/a

Radiation

n/a

Targeted Therapies & Trials

n/a

Treatment Center(s)

n/a

Age at Diagnosis

10

Year of Diagnosis

n/a

Current Status

Other

Moon

Moon was ten years old when she noticed a lump on her left tibia that looked like a small ball. She lived with it for nine months because no one could determine what it was. At one point, doctors planned for an amputation, but during her hospitalization, her parents found an orthopedic specialist in another part of Italy who was able to save her leg, twice.

She experienced localized recurrences and underwent multiple surgeries, along with radiation and chemotherapy for one year. During treatment with vincristine and other medications she does not recall, she was extremely ill, sleeping constantly, vomiting, and struggling to swallow. She was hospitalized several times for high fevers and required blood transfusions.

Moon never developed metastases, but later developed ulcerative colitis at age eighteen, a condition she continues to manage. While doctors say it is not connected to her cancer history, she does not fully exclude the possibility. Today, she describes her life as full. She is a violinist, yoga teacher, and loves surfing.