Every Story Shapes the Future

Behind every synovial sarcoma diagnosis is a person – and a circle of family and friends navigating
treatment, survivorship, or remembrance. These stories create connection, spark advocacy, and reveal
human side of research.

Whether you are in treatment, NED, living with recurrence, supporting someone you love, or honoring
someone you’ve lost – your story belongs here.

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MEET PATIENT

Katarina (Katie) Ventus

Diagnosed in July 2021 at the age of 12 after feeling a lump in her left cheek. An x-ray, ultrasound, and MRI at CHOP revealed a mass. A biopsy confirmed it as synovial sarcoma. The 5.5 cm tumor was successfully removed at CHOP by Dr. Ken Kazahaya without nerve damage. Shortly after, Katie began chemotherapy. […]

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MEET PATIENT

Beth Primm

Diagnosed with Synovial Sarcoma in December 2016 after a 10 cm tumor was found in her pelvic wall during a routine OB-GYN appointment. Thinking it was a fibroid, surgery was performed to remove it. Upon opening her up, the doctor realized it was more than just a fibroid, took a biopsy, and sewed her back […]

Simple outline of a person above the name "Beth Primm" highlighted in yellow, with the Synovial Sarcoma Foundation logo and text in the bottom right corner.

MEET PATIENT

Joey Toro

Joey was officially diagnosed with Synovial Sarcoma on December 23, 2017, after being misdiagnosed twice while experiencing years of worsening hip and abdominal pain that had originally been attributed to old football injuries and other unrelated conditions. While attending the police academy, Joey was hospitalized with severe pain, but even imaging at the time failed […]

A smiling police officer in uniform holds a diploma. Text reads “Joey Toro.” The Synovial Sarcoma Foundation logo appears in the bottom left corner. The background is a soft green gradient with circular shapes.

MEET PATIENT

Seth Quinn

Seth was diagnosed with Synovial Sarcoma in his left knee in November 2020 after initially being misdiagnosed with a vascular malformation in 2018. Prior to his diagnosis, Seth underwent two embolization procedures in 2018 while searching for answers to his symptoms. Seth participated in a radiation clinical trial at UCLA Medical Center, where he underwent […]

A man in a wetsuit stands on a beach, smiling at the camera. Text on the left reads "Seth Quinn" and "Synovial Sarcoma Foundation" with a ribbon logo. The background features soft green and cream tones.

MEET PATIENT

Haley Alexis Rineer

A teal outline of a person above the name "Haley Alexis Rineer" in bold, with the Synovial Sarcoma Foundation logo in the bottom right corner on a pale abstract background.

Thank You for Sharing Your Story

Please share any details of your journey that you feel comfortable with. By submitting your story, you allow the
Synovial Sarcoma Foundation to share it across our website, social media, and educational materials to help
support and inform others.

A smiling patient with a bald head and visible chest scars sits on a hospital bed next to a nurse. Both are smiling and holding up crossed fingers, with medical equipment visible in the background.

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