Every Story Shapes the Future
Behind every synovial sarcoma diagnosis is a person – and a circle of family and friends navigating
treatment, survivorship, or remembrance. These stories create connection, spark advocacy, and reveal
human side of research.
Whether you are in treatment, NED, living with recurrence, supporting someone you love, or honoring
someone you’ve lost – your story belongs here.
MEET PATIENT
Joey Toro
Diagnosed in 2018 with Synovial Sarcoma following several years of sporadic pain in his hip and abdomen, which was originally attributed to old football injuries and constipation. Even after being admitted to the ER while attending the police academy and receiving an X-ray, the hospital missed the large Synovial Sarcoma tumor pressed against his colon. […]
MEET PATIENT
Seth Quinn
Diagnosed with Synovial Sarcoma in his left knee in November 2020. He was initially diagnosed with a vascular malformation three years earlier and underwent two embolizations in 2018. Seth was part of a radiation clinical trial and underwent five days of radiation using 6 rems per day for a total of 30 rems at UCLA […]
Thank You for Sharing Your Story
Please share any details of your journey that you feel comfortable with. By submitting your story, you allow the
Synovial Sarcoma Foundation to share it across our website, social media, and educational materials to help
support and inform others.