Diagnosed in July 2021 at the age of 12 after feeling a lump in her left cheek. An x-ray, ultrasound, and MRI at CHOP revealed a mass. A biopsy confirmed it as synovial sarcoma. The 5.5 cm tumor was successfully removed at CHOP by Dr. Ken Kazahaya without nerve damage. Shortly after, Katie began chemotherapy. Midway through her treatment, she underwent six weeks of proton radiation led by Dr. Kristine Hill-Kayser. Katie has been NED since February 2022.
MEET PATIENT
Katarina (Katie) Ventus
Location
Philadelphia, PA
Primary Tumor Location(s)
Other
Metastasis or Recurrence Location(s)
None
Surgery(s)
Tumor Resection
Chemotherapy
Other
Radiation
Proton Radiation
Targeted Therapies & Trials
None
Treatment Center(s)
Children’s Hospital of Philadelphia (CHOP)
Age at Diagnosis
12
Year of Diagnosis
2021
Current Status
NED (No Evidence of Disease)