Patient Stories

Diagnosed in July 2021 at the age of 12 after feeling a lump in her left cheek. An x-ray, ultrasound, and MRI at CHOP revealed a mass. A biopsy confirmed it as synovial sarcoma. The 5.5 cm tumor was successfully removed at CHOP by Dr. Ken Kazahaya without nerve damage. Shortly after, Katie began chemotherapy. […]

Diagnosed with Synovial Sarcoma in December 2016 after a 10 cm tumor was found in her pelvic wall during a routine OB-GYN appointment. Thinking it was a fibroid, surgery was performed to remove it. Upon opening her up, the doctor realized it was more than just a fibroid, took a biopsy, and sewed her back […]

Diagnosed in 2018 with Synovial Sarcoma following several years of sporadic pain in his hip and abdomen, which was originally attributed to old football injuries and constipation. Even after being admitted to the ER while attending the police academy and receiving an X-ray, the hospital missed the large Synovial Sarcoma tumor pressed against his colon. […]

Diagnosed with Synovial Sarcoma in his left knee in November 2020. He was initially diagnosed with a vascular malformation three years earlier and underwent two embolizations in 2018. Seth was part of a radiation clinical trial and underwent five days of radiation using 6 rems per day for a total of 30 rems at UCLA […]