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Meet Patient Irene Benton

A smiling woman with a blue face mask under her chin is shown next to the name “Irene Benton.” The Synovial Sarcoma Foundation logo and name appear in the lower left corner on a soft green background.

Irene first noticed a lump in her right leg in 2019. An initial ultrasound suggested it was a benign lipoma, and she was advised not to worry. Over the next several years, the lump continued to cause intermittent discomfort. By 2025, the pain had increased significantly, and Irene felt strongly that something was not right. […]

Primary Tumor Location: Leg
Metastases: None
Surgery: Tumor Resection
Chemotherapy: AIM (Doxorubicin & Ifosfamide)
Radiation: Yes
Treatment Center: Massachusetts General Hospital
Status: Treatment Ongoing

Meet Patient Carrie Carpunky

A woman with short brown hair smiles at the camera. Text reads "Carrie Carpunky." The Synovial Sarcoma Foundation logo is in the lower left corner. The background features green and yellow circular designs.

Carrie first began experiencing unusual stomach pain in 2018, describing it as a gnawing sensation that often occurred when she had not eaten. At the time, she was under significant stress caring for family members and assumed the pain was related to an ulcer. After delaying medical care for nearly two years, worsening acid reflux […]

Primary Tumor Location: Abdomen
Metastases: Lungs
Surgery: Abdominal Resection, Tumor Resection
Chemotherapy: None
Radiation: None
Treatment Center: Siteman Cancer Center at Barnes Hospital (St. Louis, MO)
Status: NED (No Evidence of Disease)

Meet Patient Moon

Minimalist illustration with a teal outline of a person above a yellow box labeled "Moon." The Synovial Sarcoma Foundation logo appears in the bottom right corner of the image.

Moon was ten years old when she noticed a lump on her left tibia that looked like a small ball. She lived with it for nine months because no one could determine what it was. At one point, doctors planned for an amputation, but during her hospitalization, her parents found an orthopedic specialist in another […]

Primary Tumor Location: Bone, Other
Metastases: Other
Status: Other

Meet Patient Taylor Duvall

A teal outline of a person next to the name "Taylor Duvall" in bold text on a yellow background, with the Synovial Sarcoma Foundation logo in the bottom right corner.

Taylor’s diagnosis followed years of misattributed symptoms. What began as chronic foot pain was initially diagnosed as plantar fasciitis, supported by imaging that showed bone spurs. For nearly two years, custom insoles seemed to manage her discomfort. In late 2021, however, Taylor noticed a growing mass on her left foot. After sudden swelling and an […]

Primary Tumor Location: Extremities, Other
Metastases: Lungs, Lymph Nodes
Surgery: Amputation, Lymphadenectomy, Thoracotomy, Tumor Resection
Chemotherapy: Ifosfamide (single-agent), AIM (Doxorubicin & Ifosfamide), Other
Radiation: Yes
Treatment Center: Johns Hopkins Hospital (Baltimore, MD), National Institutes of Health (Bethesda, MD)
Status: Treatment Ongoing

Meet Patient W P Angelo

A simple line icon of a person above the name "W P Angelo" highlighted in yellow, with the Synovial Sarcoma Foundation logo and text in the bottom right corner on a light abstract background.

Angelo’s cancer was discovered in February 2025 after a biopsy of what was believed to be a simple abdominal cyst that had grown quickly. Initially, everything seemed normal, but internal bleeding required him to return to surgery the following day. The biopsy results took time, and by the time they arrived, nearly two months had […]

Metastases: None
Chemotherapy: Ifosfamide (single-agent), MAID (Mesna, Doxorubicin, Ifosfamide, Dacarbazine), Other
Status: Treatment Ongoing

Meet Patient Valerie

Minimalist graphic with an outline of a person above the name "Valerie" in bold on a yellow rectangle. The Synovial Sarcoma Foundation logo is in the lower right corner on a light green gradient background.

Valerie is currently NED (no evidence of disease), though the emotional weight of cancer remains a constant presence in her life. While scans show no active disease, she lives with ongoing scan anxiety-a reminder that survivorship can be just as complex as treatment itself. Valerie describes cancer as an isolating diagnosis, one that often goes […]

Status: NED (No Evidence of Disease)