Driving Hope, Research, and Action
Join us in the fight against synovial sarcoma. Learn more, get involved, and help bring hope to patients worldwide.
Eddie Cohen's Synovial Sarcoma Journey: Diagnosis, Treatment & Advocacy
At 40, Eddie was diagnosed with synovial sarcoma after a sudden medical emergency while traveling abroad. What followed was a journey through treatment, recurrence, and, ultimately, advocacy. Today, Eddie serves on the SSF Board, advocating and helping advance research.
Dr. Rachel Hurley on Synovial Sarcoma Research: Inside the Haldar Lab
An interview with Dr. Rachel Hurley, who connects patient data and biospecimens to lab research by using tumor genetics and treatment outcomes to guide mouse studies that test new therapies – with the goal of bringing them back to patients.
Synovial Sarcoma Foundation Webinar: Limb Salvage vs. Amputation, and Life After
Orthopedic oncologist Dr. Cara Cipriano of Penn Medicine joined us for a conversation on one of the most significant decisions sarcoma patients face. She was joined by survivors Eldiara Doucette and Tessa Holyoak, who shared their personal experiences navigating treatment and life after. The session closed with a live Q&A.
Synovial Sarcoma Foundation Webinar: Progress Updates & Community Discussion
The webinar features our Founder & Executive Director, Chas Spence along with our Board Chairman Nathan Imperiale, who are joined by Dr Ted Laetsch & Dr Rachel Hurley to highlight important updates on advancing treatment and research for synovial sarcoma. Julie Kramer closes with her powerful survivor story, followed by live Q&A.
Dr. Malay Haldar on Synovial Sarcoma Research: Inside the Haldar Lab
An interview with Dr. Malay Haldar, whose research has traced the biology of synovial sarcoma back to its driving fusion oncogene, work that led to one of the field’s most accurate mouse models of the disease.
Synovial Sarcoma Registry & Biorepository: Now Enrolling Patients Worldwide
Every patient who enrolls contributes to advancing research, improving future clinical trials, and giving this community a better chance at survival. If you or your loved one has ever been diagnosed with synovial sarcoma, you can now enroll WORLDWIDE.