Minimalist graphic with a simple outline of a person above the name "Christian" highlighted in yellow. At the bottom right is the Synovial Sarcoma Foundation logo with a green awareness ribbon.
Name: Christian
Location: Europe
Age at Diagnosis: 32
Year of Diagnosis: 2022
Primary Tumor Location(s): Other
Metastasis or Recurrence Location(s): None
Surgery(s): Tumor Resection
Chemotherapy: AIM (Doxorubicin & Ifosfamide)
Radiation: None
Targeted Therapies & Trials: None
Treatment Center(s): Munich University Hospital
Current Status: NED (No Evidence of Disease)
Profile Narrative: Diagnosed in January 2022 at the age of 32 after almost three years of intermittent but steadily worsening pain in his left shoulder. The symptoms were misdiagnosed as shoulder impingement, bursitis, and ganglion cyst by several physicians. A “whoops surgery” had already been scheduled, but after two failed aspiration attempts for the supposed cyst, a visible lump grew quickly, and the 6 cm tumor was diagnosed at a sarcoma center. The tumor, located between the shoulder joint and collarbone, was removed after neoadjuvant AIM chemotherapy and radiation therapy, which had shrunk it down to 3.5 cm. Margins were clear, and two reconstruction surgeries followed. Christian is still undergoing physiotherapy to improve shoulder function and has follow-up scans every three months at Munich University Hospital. He is considered NED since his tumor removal in November 2022.