About the Survey

Understanding the experiences of Synovial Sarcoma patients is essential to identifying challenges, improving treatment, and advancing research. To gather critical data, the Spence Family Synovial Sarcoma Foundation launched an ongoing global survey, collecting firsthand insights from those diagnosed with this rare cancer.

With over 200 responses and growing, this survey tracks key information about diagnosis, treatment, recurrence, and survivorship to identify trends and highlight challenges in patient care. 

Participate in the Survey

If you or a loved one has been diagnosed with Synovial Sarcoma, we encourage you to complete this survey.

Participate in the survey

Key Insights from the Survey: 

200+ Survey Responses and Growing
The Most Common Primary Tumor Location is the Leg (32%)
71% of Patients have Received Radiation Treatment
77% of Patients have Received Chemotherapy
63% of Rrecurrences have Occured in the Lungs
75% of Patients have had Surgery to Remove their Primary Tumor

This is the largest survey ever gathered from individuals with Synovial Sarcoma.

The Synovial Sarcoma Survey includes over 203 global responses to 38 questions regarding patients diagnosis and treatment for Synovial Sarcoma. 

See the survey results

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We’re eager to stay connected with you so please sign up for the latest research, information and progress.