A simple outline of a person above the name "Ciara Husing" in bold text with the Synovial Sarcoma Foundation logo in the bottom right corner on a light background with circular gradients.
Name: Ciara Husing
Location: Abilene, TX
Age at Diagnosis: 8
Year of Diagnosis: 2018
Primary Tumor Location(s): Knee
Metastasis or Recurrence Location(s): None
Surgery(s): Limb-sparing surgery
Chemotherapy: None
Radiation: None
Targeted Therapies & Trials: None
Treatment Center(s): Dr. Chappie Conrad III
Current Status: NED (No Evidence of Disease)
Profile Narrative: Diagnosed with synovial sarcoma in the left knee in August 2018 at the age of 8. She was misdiagnosed by multiple physicians for two years. A local surgeon agreed to remove the 3 cm tumor, and a biopsy revealed synovial sarcoma with positive surgical margins. The tumor was superficially located directly on top of her patella tendon, but the positive margins extended into the proximal tibia and patella tendon. After consulting multiple hospitals across the U.S., Dr. Chappie Conrad III offered a solution to avoid amputation. On October 16, 2018, Ciara underwent a radical limb-salvage operation, including surgically closing one of her growth plates, patellar tendon resection with donor allograft reconstruction, and a proximal tibia allograft. She has been NED since that date.